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Parkinson's Disease Research - 2008
What is PSP?
Stages/phases of PSP
Caregiver's guide
Do drugs help?
Eye movement problems
Neuropsychiatric aspects
Swallowing difficulties
PSP Survey
The University of Louisville, in coordination with the National Institute of Health, is studying Genetic and Environmental Risk Factors associated with Progressive Supranuclear Palsy. For further information go to:
PSPStudy.com
Our Purpose
We aim to be the voice of those who have been stricken with Progressive Supranuclear Palsy (PSP) and/or other Parkinson's Plus neurological conditions.
We will be the place where they, their caregivers, families and friends will be able to find the information, guidance and support they need.
We welcome you here!
You are NOT alone!
Use this link to send us your comments, concerns and suggestions.
Visit and Join Our Forum...
You're invited to visit and join our forum hosted by Yahoo Groups. You'll be meeting a fine group of individuals who share your interests and who are happy to offer you their support.
What you'll be able to get out of being a member of our forum will largely depend on what you put into it. We invite full participation in our discussions. Feel free to jump in with "both feet."
To join our forum enter your email address below, press the "Go" button and introduce yourself to the group.
You can visit the forum online at: http://health.groups.yahoo.com/group/pspinformation/ Once you become a member of the forum you will receive copies of forum messages as they are posted. It's also possible to read messages previously posted to the forum by using this link.
Information on the PSPInformation forum is provided for informational purposes and is not meant to substitute for the advice provided by your own physician or other medical professional. You should not use information contained herein for diagnosing or treating a health problem or disease, or prescribing any medication.
Search for Information...
We suggest you search for the information you need by entering your keywords below.
Please Help Us...
We are always trying to make this website more useful and comprehensive. If it has helped you in some way we hope you feel the desire to help toward its continuation and growth.
Your help can consist of sharing your knowledge and experiences, providing words of encouragement, volunteering to help with the work and/or helping financially. We need you.
To help financially please consider using the links we provide to our sponsors when you shop online. These merchants have agreed to donate a small part of what you spend with them to support this website. Using our links will not increase your cost in any way. Look for the list of sponsors on the left-hand side of your screen.
A way to contribute financially via an electronic check, credit, debit or ATM cards is by using PayPal (which is owned by EBay). PayPal can also handle International transactions converting one currency into another. We've found PayPal to be safe, speedy and convenient.
To donate to the continuation of our work using Paypal press the "button" below.
And of course there is always the mail. Our address is PSPInformation.com, 2214 Heywood Ave., Charlotte NC 28208.
Folding@Home
We encourage you to join thousands of other computer owners in Stanford University's Folding@Home distributed computer project. The project uses a large network of individual computers and computer based game machines to process data looking for folding protein patterns that may eventually lead to cures for various neurological disease including Parkinson's, Alzheimer's and others.
The software runs in the background as you otherwise use your computer. It can also work as a screen-saver.
You can find out more about Folding@home, sign-up and download the associated software at: http://folding.stanford.edu/
Support Groups
We provide a listing of Support Groups for those with PSP and other neurologic diseases and their caregivers.
You can go to the listing by using this link.
If you are associated with a support group we will be glad to list it on our websites so others may find you.
Additional disease focused support groups are being formed. Anyone wishing to start a support group or add their existing one to our listings should contact the webmaster.
